Pediatric asthma: quality of life of the patient related to the family impact
Georgina Eugenia Bazán-Riverón, Remei Prat-Santaolaria, Laura Evelia Torres-Velázquez, Javier Sandoval-Navarrete, Dolors Forns-Serrallonga
2010, Number 2
2010; 69 (2)
ABSTRACT
The purpose of this study was to know the relation between asthmatic children’s quality life (QL) and their family impact in Mexican population. Participated 300 children with asthma and their caregivers, they reported the children’s age, and gender; the medical team collected patient’s affectation level and morbidity; the children’s QL and the family impact were evaluated with the questionnaires PAQLQ and IFABI-R, respectively. The Results showed that asthma has significant influence in children’s QL and their family life (average of the PAQLQ 3.37, DT = 1.13 and average of the IFABI-R = 2.45; DT = 0.71). The children perceive the main damage is in the activities limitation dimension and the caregivers perceived in the social-emotional. The rate of the PAQLQ and degree of affectation was significant (F = 2179.763; p ‹ 0.0001) and rate with morbidity showed moderated rates and low (r = -0.52 – r = -0.62 and r = -0.16 – r =-0.28; p ‹ 0.01). The PAQLQ rate was no significant in gender; the age showed that older children perceived with better QL (F = 4.866; p ‹ 0.05) and with older children, less family impact (r = -0.87; p ‹ 0.01). The children QL relation with the family impact showed high negative rates and moderates with the dimensions of the IFABI-R (r = -0.73 – r = -0.89 and r = -0.52 r = -0.61; p ‹ 0.01). We concluded: the patient and their caregivers perceive a high impact in the QL and the family life respectively, and that perception is related with the level of affectation of the asthma, morbidity and age of the patients.
KEYWORDS
Paediatric asthma, quality of life, family impact.
REFERENCES
Global Initiative for Asthma. Global strategy for asthma management and prevention. Revised 2008 Bethesda, Md., National Institutes of health, National Heart, Lung and Blood Institut. Publication. http:/www.ginasthma. org/
Perpiñá TM. La medición de la calidad de vida relacionada con la salud. En: los ensayos clínicos sobre asma. 2008. Fecha de acceso: 30 de marzo, 2010. Accesible en: http://www.libromp3.com/dmdocuments/Anon%20 -%20Cap_09.pdf
Vidal GA, Duffau TG, Ubilla PC. Calidad de vida en el niño asmático y su cuidador. Rev Chil Enf Respir 2007;23:160- 166.
Velarde JE, Ávila FC. Evaluación de la calidad de vida. Salud Pública Mex 2002;44:349-361.
Alvarado M. Evaluación del impacto familiar del asma bronquial infantil [tesis doctoral]. Barcelona: Universidad Autónoma de Barcelona, España; 2002.
Sierna MJJL, Del Río NBE, Álvarez AM, Blandon VV, Gómez CR. Calidad de vida del cuidador del niño asmático. Gac Med Mex 2004;140:139-146.
Gómez BRA, González IY, Morejón FJM, Travieso PR. Calidad de vida relacionada con salud en niños asmáticos y sus cuidadores. Revista Científica Electrónica de las Ciencias Médicas en Cienfuegos Medisur 2005;3:13-26.
Beltrán GFJ, Torres FIA, Vázquez NF, et ál. Calidad de vida en cuidadores de enfermos asmáticos: un estudio comparativo. Psicología y Salud 2008; 18:181-187.
Barrueto CL, Yánez FM, Gálvez VV, Mallol VJ. Calidad de vida en madres de lactantes portadores de sibilancias recurrentes. Rev Chil Enf Respir 2004;20:71-75.
Annett RD, Bender BG, DuHamel TR, Lapidus J. Factors influencing parent reports on quality of life for children with asthma. J Asthma 2003;40:577-587.
Wittich AR, Li Y, Gerald LB. Comparison of parent and student responses to asthma surveys: students grades 1-4 and their parents from an urban public school setting. J Sch Health 2006;76:236-240.
Cane RS, Ranganathan SC, McKenzie SA. What do parents of wheezy children understand by “wheeze”? Arch Dis Child 2000;82:327-332.
Rietveld S, Prins PJ, Colland VT. Accuracy of symptom perception in asthma and illness severity. Child Health Care 2001;30:27-41.
Manning HL, Schwartzstein RM. Respiratory sensations in asthma: physiological and clinical implications. J Asthma 2001;38:447-460.
Guyatt GH, Juniper EF, Griffith LE, Feeny DH, Ferrie PJ. Children and adult perceptions of childhood asthma. Pediatrics 1997;99:165-168.
Yawn BP, Wollan P, Kurland M, Bertram S. Comparison of parent and student responses to asthma surveys: students grades. J Sch Health 2006; 76:241- 245.
Callery P, Milnes L, Verduyn Ch, Couriel J. Qualitative study of young people’s and parents’ beliefs about childhood asthma. Br J Gen Pract 2003; 53:185-190.
Del Rio-Navarro B, Del Rio-Chivardi JM, Berber A, Sienra- Monge JJ, Rosas-Vargas MA, Baeza-Bacab M. Asthma prevalence in children living in north Mexico City and a comparison with other Latin American cities and world regions. Allergy Asthma Proc 2006;27:334-340.
Bazán RG, Torres VL, Prat SR, Sandoval NJ, Forns, SD. Impacto familiar del asma pediátrica. Versión mexicana del cuestionario IFABI-R. Rev Inst Nal Enf Resp Mex 2009;22:37-47.
Juniper EF, Guyatt GH, Feeny DH, Ferrie PJ, Griffith LE, Townsend M. Measuring quality of life in children with asthma (PAQLQ). Qual Life Res 1996;5:35-46.
Gallardo M, Arias C, González D, Galindo R. Costos derivados de la atención médica del asma en un grupo de niños del Noreste de México. Rev Alerg Mex 2007;54:82-85
Salgado A, Ceballos M, Sandoval J, Hernández C. Agudizaciones del asma y sus costos de atención en el servicio de urgencias. Rev Alerg Mex 2006;53:64-68.
Ortega AN, Huertas SE, Canino G, Ramirez R, Rubio- Stipec M. Childhood asthma, chronic illness, and psychiatric disorders. J Nerv Ment Dis 2002; 190:275-281.
Ortega AN, McQuaid EL, Canino G, Goodwin RD, Fritz GK. Comorbidity of asthma and anxiety and depression in Puerto Rican children. Psychosomatics 2004;45:93-99.